Home & Community Based Services (HCBS) Rule Emerging Topics Survey Findings

If you did not respond to the Emerging Topics survey and would like to, please click here to visit the survey. Complete the survey by June 30, 2020 for a chance to win a $25 Visa gift card!


In January 2014, the Centers for Medicare and Medicaid Services (CMS) announced a Final Rule on Home & Community Based Services (HCBS). HCBS are Medicaid services for people with disabilities to help them live in their own homes and communities. The HCBS Rule is important because it will ensure individuals with disabilities have the same access to community resources as individuals without disabilities. It will also protect the rights of individuals with disabilities to make decisions about the services they receive and who provides their services. The deadline for states to implement the HCBS Rule is March 2022.

As the state of Michigan transitions to compliance with the Final Rule, the Michigan Department of Health and Human Services (MDHHS) and the Michigan Developmental Disabilities Institute (MI-DDI) are committed to providing information on the HCBS Rule to individuals with disabilities and their family members. This is why MI-DDI is surveying individuals on their knowledge and informational needs related to HCBS.

Beginning in September 2019, MI-DDI surveyed individuals to learn:

  • Survey respondents' current knowledge of the HCBS Rule
  • What survey respondents want to know about the HCBS Rule
  • How survey respondents want to receive information about the HCBS Rule

  • Who responded to the MI-DDI Emerging Topics survey?

  • From September through December 2019, 147 individuals responded to the survey
  • 100% of survey respondents lived in Michigan
  • 7 in 10 survey respondents were individuals with a disability or a family member of an individual with a disability
  • 10 people pictured, 7 of the 10 pictures are shaded in, indicated 7 out of 10 survey respondents who were individuals with a disability or family member of an individual with a disability

    What did the MI-DDI Emerging Topics survey discover?

    Circle icon with a notepad and a magnifying glass on top of it

  • Most individuals with disabilities and family members reported that they did not know much about the HCBS Rule. Eighty-eight percent (88%) of adults with a disability and 86% of family members stated that they knew little or nothing about the HCBS Final Rule.
  • Survey respondents who knew the most about the HCBS Final Rule worked in the disability field. Fifty percent (50%) of individuals working in the disability field said they knew a great deal about HCBS. Only 12% of individuals and 14% of family members reported knowing a great deal about HCBS.
  • Survey respondents want more information about HCBS, specifically:
  • Icon with a person in the center with graphics around them - graphics are people dancing, physician, megaphone, lightbulb, basketball, a house, alarm clock, gears, a map, hands being shaken, WiFi logo, and gears turning in a person's head. Around the icon are three speech bubbles that state: 1) How can I live, work, and have fun in the community with HCBS supports and services? 2) How can I use Person centered Planning to receive HCBS supports and services? 3) What should I expect from quality, compliant HCBS supports and services?

  • Survey respondents want to receive HCBS information in different formats.Icon with a computer screen
  • More than half of the respondents prefer to access online and print materials, such as email, social media, or a printed one-page document.

  • Next Steps & Thank You

    Icon that is navy gray and has colored words that read Thank YouThank you to everyone who responded to the first and second rounds of the Emerging Topics survey! MI-DDI appreciates your thoughtful responses and for helping us learn about your informational needs related to HCBS.

    Survey respondents who provided their contact information were entered into a $25 Visa gift card raffle after completing the survey. Ten respondents were randomly selected and contacted in January 2020. Congratulations to our ten raffle winners!

    Your responses to the Emerging Topics survey are important to us! Your feedback will assist MI-DDI in developing useful HCBS community resources.

    Our webinars on HCBS and Person-Centered Planning (PCP) took place on March 27 and 31. Resources from these webinars will be posted soon on our HCBS site. Please click here to visit the HCBS site.

    If you would like more information on the HCBS Final Rule, please visit https://ddi.wayne.edu/hcbsinfo.

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